Long-Term Botox for Hemifacial Spasms

Although I am not aware of any long-term studies done on the safety of botox used for different conditions when used for thirty years, there do not appear to be problems when patients have had botox injected for cosmetic treatment for many years.  If your treatment is working well, there may not be a good reason to undergo surgery now.  Check with your neurologist if you have not yet done so.
 

Hi.  For most patients with hemifacial spasm Botox does work well long-term.

I have personally treated a significant number of patients with hemifacial spasm for 14 years straight.  It has been extremely rare for these patients to have lost effectiveness of the Botox over time.  Some patients in my practice have been treated with Botox for over 25 years by various doctors. They seem to do well over the long haul.

Microvascular decompression (a neurosurgical technique) can do wonders, provided that the surgeon has significant experience with the technique.

The vast majority of my patients choose to keep on with the Botox for hemifacial spasm so long as the results are satisfactory.  A few never felt the Botox gave adequate relief and opted for the neurosurgery early on.

Hope this helps.

Mark Lucarelli, MD FACS

Madison, WI

Dear Balloon

There are no 30 year studies of BOTOX for hemi-facial spasm because BOTOX has only been available for the past 23 years.  There are studies that have looked at the effects of treatments over 15 years and there is another study that includes patients first treated in 1990.  These studies suggest that treatment continues to be beneficial over these very long time frame.  I more significant question is if you have been properly worked up for blepharospam?  Surgery is generally reserved for situations when there is evidence of compression of the facial nerve by the posterior inferior and anterior inferior cerebellar artery or venous compression.  A teflon felt is inserted between the structures or a stitch may be places to support the blood vessel off the nerve.  This does of course involve neurosurgery.  I would recommend discussing these options with your treating neurologist. Certainly, there should be a high likelihood of successful surgery before abandoning the Botox treatments which sound like they have been helpful for a treatment that may or may not be helpful for you.