Botox for Trigeminal Neuralgia?

I have severe trigeminal neuralgia after orbital decompression surgery for thyroid eye disease. I've been sent to the trash heap of 'pain management', which is completely ineffective.

I heard there was a study of patients in Brazil getting Botox injections for this kind of pain and all were helped to some degree. My question is, what kind of doctor do I see for this? Neurologist? Plastic Surgeon? I'm in Dallas/Fort Worth area and I need a rock star to tackle this after the horrible misery I've been through.

Tags:

pain trigeminal neuralgia

Comment on this

2 Doctor Answers | Asked by ballerinaaa in Fort Worth, TX

Doctor Answers (2)
Community Comments (1)

Trigeminal Neuralgia Botox & Kenalog

I have been able to treat patients effectively with kenalog injections. Usually on palpation the branch of the trigeminal nerve causing the pain can be identified. Its usually either supra orbital, supratrochlear or infraorbital. Then I inject 5mg of kenalog into the nerve itself using 30gauge needle with 0.5cc of Kenalog 10. It takes the pain away for about 3 months. I have not use Botox in the nerve but in the muscles of chewing with some success. You should look for someone who deals... more

An oculoplastic surgeon could help

It's worth trying Botox to see if it helps you. You could see an oculoplastic surgeon. This is a specialist who treats thyroid eye disease and has alot of experience with Botox. To find one near you, go to www.asoprs.org.

Comments (1)

Stephen Dallas 29 Dec 2012

I'm trying to get the attention of the TNA Facial Pain Association. Trigeminal Neuralgia is one of the most devastating face pain syndromes, so called the Suicide Syndrome. In the worse cases, it is like putting a Taser gun up to your face everytime you smile, talk or brush your teeth. So at any given moment, you get a shock with no respites ... ever ... sometimes years. Janet Travell, MD and Edward Rachlin, MD, the myofascial pain authors have chapters in their textbooks that can begin therapy to help. There are acupuncture protocols that will help. Chan Gunn, MD who is the author of Intramusclular Stimulation or IMS also a pain guru notes effective treatment in his text. !!!On TNA Facial Pain Association website they have only 1 reference to an acupuncturist in the entire United States and none for IMS!!! If anyone out there is cyberspace can get this information to these suffers, please help them.

Ask a Question