Vitamin D levels off post sculptra

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Blood tests. Others harmed will have the same findings. This does not mean as I have found that adding vitamin D3 will help.

& I was told by mu rheumy MD that granulomas produce ACE (mine is abnormally high) and 125 Vit D, reguular vit D low because the 125 vit is high (mine also abnormally high). The sculptra causes a granulomatous disease state. Like. Sarcoidosis, wegners but the sculptra version.

What is your ACE result? What is considered high. I just tested and it was 72. This was a good day.

Mine is now down to the mid 80s, at last check. At one point it was in the low 100s. According to references: Normal results for ACE = Normal ranges for this test are laboratory-specific but can range from 8-57 U/ml for patients over 20 years of age. Typically, adults have ACE levels less than 40 micrograms/L. This test is useful to monitor the activity of the granulomatous inflammatory foreign body response. ACE itself, at these abnormal levels are not dangerous but do indicate something is going on. You should be seeing a Rheumatologist who knows about Sarcoidosis (that does not include lung, some specialists just deal with lung, which is the typical presentation for sarcoidosis) and Scleroderma because they know the most about the foreign body immune response and the disease it causes. The random Rheumy may not be able to help, just like the random Plastic Surgeon or derm who injected this disease into you. That person did not know enough about the device (s)he was implanting into your body and that now can not be removed. You may also need a neurologist and opthamologist who is familiar with neurosarcoidosis and scleroderma issues. If you go to some of those disease specific support groups web sites they often can recommend a physician who can help. FYI my lungs are completely clear. This is all Sculptra disease. A good integrative medicine Dr. can also help you to try to manage this Sculptra disease. Good Luck. It is tough going.

That was my phone, so to correct the typos. @Megan P, My Rheumatologist MD told me that granulomas make the 125 Vit D. The typical blood test run on most people tests for a different Vit level. The typical blood test will show low vitamin D. In my case my vitamin D was low but when the Dr ordered the special test for 125 Vit D, it is abnormally high (as in my case). Also Angiotensin Converting Enzyme ACE, is produced by granulomas and is a good blood test marker to track the progress of the condition.

This is about other causes for abnormally high ACE. Increased ACE levels may be a sign of sarcoidosis. ACE levels will rise or fall as sarcoidosis becomes worse or improves. However, increased ACE levels may also be seen in several other disorders, including: Active histoplasmosis Alcoholic hepatitis Asbestosis Asthma Berylliosis Diabetes Emphysema Gaucher's disease Hodgkin's disease Hyperthyroidism Idiopathic pulmonary fibrosis Leprosy Lung cancer Multiple sclerosis Nephrotic syndrome Silicosis Tuberculosis