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Random Scarring The Past Months (Please Help!)

  • boafriend
  • 1 year ago

I've scoured the Internet for those websites where you can ask medical professionals for help, but realized all of them required you to pay if a doctor actually responds....I guess nothing is free. I figured coming on here was better than nothing. Pretty much, since March, I have had a plethora of odd and disturbing things happening to my skin. I've come across many various posts on different forums with people who seem to have experienced similar symptoms as I have, but all these threads ended up dying out with no continued discussion. So this is just my experience: Near the end of March, I noticed random pockmarks and thin indented lines forming all over my face. From April to June, I've gone to 3 dermatologists or so for answers, all of whom have been unable to give me a proper diagnosis.

The first thing Google and Acne.org told me was some rare scarring disease called AMVC (atrophia maculosa varioliformis cutis), but none but one of the dermatologists I visited had heard of this disease before - the one that had heard of it assured me I didn't have it and that there was debate among dermatologists whether such a disease actually exists. I had a bloodtest done for autoimmune disorders (Lupus, scleroderma, etc.), as well as 2 skin scrapings done for fungal/yeast infection and scabies/parasite testing, all of which came back negative. Normally, this would be good news to any average person, but to me, it just meant there was no explanation for what I had going on.

The scarring would happen every week, meaning every week when I looked in the mirror, I would notice a new dent or some damage of a sort. You can imagine how depressed I became due to all this, esp since I am someone who cares about his looks and appearance a lot. Since July, I noticed the random scarring on my face appeared to have stopped, so I started to feel a bit better. But unfortunately just a few days ago, I noticed a vertical dent right in the middle of my forehead....and it's like I'm back in hell all over again. I have a picture of the recent scar (surely the picture will do no justice though, due to lighting), but I figured it's better to have something than nothing. I can't say it's a true dented scar, but it IS a dented line that is quite noticeable if lighting is to any side of my face.

My mom thinks it can be an expression mark, as I frown my forehead a lot, but it doesn't make much sense to me since most expression lines are horizontal, and also, this line really came out of nowhere. If I relax my forehead to the best that I can, the line is still there. My mom thinks I probably had the line previously and just never noticed it, but I know for a fact that had I had the line previously already, I sure as hell would have noticed. I'm paranoid because I have Chinese cupping and acupuncture done every week, and I had a needle placed near that area on my forehead, which might I add hurt a lot that time I had it done. Of course the day after, the area was slightly red, but that's when I noticed the dent, which seemed to "stem" from that point where I had a needle. However, acupuncture is not known to cause physical dents to the skin, so this just puzzles me. I just don't know what to make of it....and it sucks because this new dent is just...there right in the middle of my forehead now. I was thinking maybe because my forehead is pretty tense, my muscles would relax in the days following the acupuncture, but honestly....who am I kidding. This is not normal, and acupuncture doesn't cause crap like this. I have also included a picture of one of the linear scars I experienced spontaneously on my face for you guys to see.

Aside from my face, around March to April, I noticed I started forming a bunch of horizontal lines all over my knees. I initially didn't take it too seriously since I'm quite lacking on body care (I don't exfoliate or moisturize regularly). Also, I have always been a runner, but didn't run for most of my time in college. I picked up running regularly again in February or so, so I thought perhaps these lines were associated with runner's lines or whatever marks people online have been labeling such phenomena as....I even thought they were possibly stretch marks. However, one of the dermatologists I went to found these lines to be very peculiar and suggested I go in for allergy testing; another dermatologist I went to said the lines were Langer's lines, particularly lines of tension (and she said they absolutely were not stretch marks). However, I've searched up Langer's lines like mad all over the Internet and have not been able to come across any helpful information - only stuff I've seen is that they are natural lines surgeons use to guide them in surgical procedures. The dermatologist who told me they were Langer's lines said with regular exfoliation and moisturizing, the lines should fade...I've been regularly doing both for about a month now and have seen no improvement.

To make things worse, in April, I started experiencing random twitching and prickling/bug crawling sensations all over my body. As mentioned, a skin scraping was done to test for scabies or bugs, and I also took Ivermectin just for safety measures, but the sensations have not stopped. I went to an allergist upon the recommendation of one of the dermatologists I visited, who felt everything I was experiencing could be related to some bizarre allergy of a sort. He's put me on Zyrtec, which I think has slightly helped calm the sensations down, but they're definitely still present. I know what I'm experiencing may be trivial to some, but it's definitely caused me unimaginable depression. Yes, it's such a superficial thing to be bothered about, but when it's something regarding your face, and worst - something no medical professional has been able to help with, you cannot imagine the distress and anxiety it can cause. The prickling sensations don't help, either. I feel I'm alone and suffering from some unknown disease or something that no one can help me with. If anyone has any helpful suggestions or experiences or just anything that will help me, please do help. I'm at a breaking point. Thanks.

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It`s a really strange problem you face. Usually skin problems are symptoms and the real problem is inside body- this is inflammation. I had psoriatic arthritis with very serious diagnosis and now I’m fine using a new 100% natural Omega 3 product from a North-European producer (only they promise a ratio of 3:1 or lower). As I was sceptic I measured, and still do, Omega 3 effect and Omega 6:3 ratio due to its importance. I use a blood test from leading independent laboratories. This is a simple dry blood-spot test for home sample collection. Leading laboratories analyze the sample to determine your fatty acid profile as a reflection of your diet. The balance test identifies levels of 11 fatty acids in the blood with 98% certainty. You will learn your blood levels of omega-3 and your ratio of omega 6:3 for balance, plus receive a report to increase your health and dietary awareness. Test results will show whether your diet is balanced or unbalanced. My first test ratio was 8,4:1, second after four months 3,4:1 and third a year later 1,6:1 and now I´m fine. Finally, with a ratio of 3:1 or lower then all lifestyle diseases (skin, joints, asthma, allergies, diabetes 2, high blood pressure, thyroid, osteoporosis, cardiovascular diseases and etc.) will start disappearing. I know lot of recovered people now and the product works, so it just might help you as well.
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Thanks so much RihoZN. Yeah I know when I used to cruise Acne.org, many people came to the conclusion that an Omega 3 and 6 imbalance was the culprit, but it's nearly impossible to find a medical professional who can look into this. The doctors I have brought this possibility up to have just shook their heads and told me I was reading too much wild conjecture online. I've had an extreme paranoia of fish since then because prior to all my symptoms starting (scarring, twitching, prickling) I ate a LOT of fish for 4-5 months or so. I have a feeling this is a reason why I've been experiencing all this. Do you have recommendations of where I can have this Omega 3 & 6 thing done? Or at least what labs, kinds of doctors. Thanks
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I guess an allergy to fish is a possibility, specifically to fish protein, but in this oil there practically isn’t any protein. If you’d like more info, just email me at rihozn@gmail.com.
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Is there any new input from anyone? I haven't found any relief since my last visit here. My mom went to a doctor specializing in Chinese and Western medicine (I was not physically there) and she spoke to the doctor about my symptoms, and the doctor stated his son had the same symptoms as I did (the scarring wasn't mentioned here). The doctor said it is all due to an accumulated overdose of sugars, namely high fructose corn syrup. He said I have to stop consuming anything with this, and that it will take 1-2 years maybe for all the twitching and static/prickly/jumpy sensations to stop. What are everyone's thoughts on this? I've never heard of an explanation as such. Secondly, before this doctor appeared, I reached out on LymeNet and found 3 Lyme literate doctors in Los Angeles; none of them take insurance, and the cheapest doctor I was able to find required a $650 payment upfront, with fees that will accumulate for lab testing, antibiotics, and follow up visits. Ridiculous. My appointment in on the 23rd but I'm just really unsure what to do right now. All these twitching sensations have not stopped and the thing that irks me the most is that the sensations are most out of control and consistently present on my face and my scalp. My hair and eyebrows twitch the worst, followed by random zip, zap sensations all over my face. I still have random fasciculations all over my body, but it's not as common now. I know someone here mentioned some time ago that this could be Bartonella, given the indented lines I have all over my knees. But with Bartonella, I've looked and there are usually rashes and what looks like bruising accompanying these lines, and I have none of that. Furthermore, nothing can explain the random scarring on my face; I don't really see lines forming anymore, but now it's more of little dents and divots. I mentioned in my initial post over a year ago that I was at my breaking point....no one can really understand how I've gotten through the past year. I've seen countless doctors and have gone from the likes of UCLA to USC. Can anyone be of extra help? Or at least provide some input? Thank you.
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im going through exactly the same thing. soon I will have no skin left to scar. thought it was just me in the world that had this. I get like triangular shaped scars. but I have now acne. and every now and then I have a new ice pick not deep but noticeable
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Hi, sorry for not responding to this earlier. Yeah for me I don't get triangular scars per say, but just random small divots, pock marks, and indented lines (almost look like wrinkles, but they're not). The frequency is not as severe as it was when all this started last year, but the phenomenon has definitely not stopped. I'm resorting to dermastamping and a PMD to hopefully eradicate these scars. And unfortunately my whole twitching, prickling, buzzing sensations have not subsided. I've gone to countless doctors now and no one is able to give me a diagnosis or help at all. It's frustrating to say the least; every day I struggle to stay sane.
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Has anyone tested you for bartonella? It can cause skin marks on different places in your body (everyone's look different so it's hard to compare to pictures online). It can also cause neurological symptoms - such as twitching. I'm no doctor but it sounds to me like there could be some underlying viral or bacterial infection. Also keep in mind that lyme/co-infection testing is weak at best. So if you do go down this road, see a lyme literate doc who will know the appropriate testing to do through the right lab. Good luck!
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Thanks Skingrl. Bartonella has never crossed my mind and for the most part, no dermatologist that I've gone to has ever brought this up as a possibility. My biggest money has been on some sort of bacterial/viral infection as well, but....I've done so many blood tests (stool, urine, blood) and no doctor has been able to find anything. I don't even know what doctor I would have to turn to to test for these type of things. I have also brought up Lyme to neurologists and endocrinologists that I've been to, but they've all immediately just said, "No." It's hard finding a doctor who will truly listen to me and take my concerns into consideration.
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Hey! I totally know what you're talking about w/ Lyme disease & co-infections such as bartonella in terms of doctors and testing. You have to find a "Lyme Literate Doctor" in your area. They use different more advanced labs for their testing. They will help you get to the bottom of it. I'm not sure where you live but try googling lyme literate doctors and your area and see what you come up with. One of the labs they frequently use for testing is Igenex. I'm clearly no expert, but I'm telling you those marks on your leg really resemble bartonella. If it's any consolation, I'm going through almost the same thing right now. I've been violently sick for two years, have the same marks on my face as you do, and my white cell count is very low (indicating infection). My doctors so far know that I have a very rare fungal infection known as saccharomyces cerevisiaie and I'm currently undergoing testing for bartonella & lyme. Let me know how things go for you...if you need help trying to find a doc let me know and I'll see what I can find. Don't give up! You will find an answer!
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Thanks. Yeah blood tests have shown zero signs of a possible infection, which is why I'm puzzled. I've been thinking some sort of parasite and bugs are at play as well since the twitching I have is very severe on my scalp and eyebrows (the hair will feel static-like and jump/twitch for no reason), but a skin scraping I had done found nothing. I've thought about hair analysis as well, but those are impossible to find. I've searched for Lyme literate doctors to no avail as well. It's hard since I'm on the West Coast, and more so, doctors here aren't even that familiar with Lyme symptoms. If you could help, that would be great. I'm near Orange County in Southern California.
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Hey, traditional testing (ie: western blot) are NOT showing up positive in the majority of people who end up having lyme or bartonella. That is why certain doctors known as LLMDs (lyme literate doctors) have developed other testing and treatment for people who can't get a diagnosis. If you read some of the literature on this or watch the documentary Under Our Skin (Netflix) you will see what I'm talking about. I was able to find a doc in your area named Dr. Steven Harris in Redwood City. The phone is 650-474-2130. I tried to post the link to the website but realself won't let me. If you google Pacific Frontier Medical and Dr. Steven Harris it will come up and you can read more about what they do. I believe they use igenex labs for this testing - not the western blot. It's worth checking out.
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Redwood is up in NorCal. I am in SoCal and need someone closer. Any help?
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Nevermind, I went on Lyme Net and someone was able to find me a doctor in Tustin, CA, which is in the OC. I am waiting for the hospital to get back to me. Thanks for the help though. And while on this subject, so I know everyone has pretty stated that my sensations (twitching, pin prickly feelings, cold flashes, random sharp pain) are in line with a potential infection, but what about my random scarring? This is always the one thing NO doctor has explanation for. I used to have random linear lines form ( a lot on my face), in addition to random pockmarks, and indented pores/enlarged pores it seems. I don't squeeze my pimples or horrendously pick at anything, so it baffles me as to what the hell this is. I've had similar markings show up on my body too (the knees are the most severe, followed by random small divots and lines on my arms, etc). I've been through the whole AMVC freak out from Acne.org and I am eliminating this as a cause because it's just ridiculous. Any ideas?
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Hi boafriend, Have you tried using High Frequency electrotherapy? If not, I definitely recommend using the Lift Wand for your scarring. It's a safe option over other pricey procedures. Here's the website if you'd like to learn more about the wand: http://www.lift-care.com/products/lift-wand/ But I wouldn't buy it on that website because Amazon sells it at a better price. http://www.amazon.com/Lift-Frequency-Eliminates-Breakthrough-Care/dp/B00H93O97Q/ref=sr_1_1?ie=UTF8&qid=1387774286&sr=8-1&keywords=lift+wand]amazon Good luck! I hope it helps.
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Anyone have any more help though? Even if I am seeing improvement from the Syprex products, they're not combating the issue at hand. I don't want to believe I have AMVC but at the same time, I've done tests for autoimmune diseases and they've come back negative. But people have said that those tests don't mean that you don't have something autoimmune going on - it just means you don't have a DISEASE. You could still have an autoimmune reaction going on in your body. But what I don't understand is how (if I do have an autoimmune reaction occuring), how it would be directly affecting my skin?
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Anyone have any more help though? Even if I am seeing improvement from the Syprex products, they're not combating the issue at hand. I don't want to believe I have AMVC but at the same time, I've done tests for autoimmune diseases and they've come back negative. But people have said that those tests don't mean that you don't have something autoimmune going on - it just means you don't have a DISEASE. You could still have an autoimmune reaction going on in your body. But what I don't understand is how (if I do have an autoimmune reaction occuring), how it would be directly affecting my skin?
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Hi, boyfriend, I am familiar with autoimmune diseases for I've been suffering from psoriasis for years. May I ask you what your eating habits and life style are like? Even though auto-immune diseases run in my family, I am starting to realize that what I have done to my body over the years is a big part of why I am getting sick. I have a ridiculously fast metabolism and all my life I never had to worry about gaining weight. So I lived on sugar and caffeine for decades thinking I was invincible. I also hate exercising and never do anything that would make me sweat or raise my heart beat. I seriously wonder if this has anything to do with what's been happening to my skin. So how is your lifestyle? Are you an active person with good eating habits? If you are, my theory, I guess, wouldn't make any sense, but if you are a lot like me, maybe we are onto something. Please let me know. I recommend that you watch Fat, Sick, and Nearly Dead to learn more about how bad eating habits are related to autoimmune diseases. It is a very inspiring documentary and I am seriously considering to purchase a masticating juicer after watching the movie. I was never tested for autoimmune diseases, but anyone can see that I have psoriasis on my legs. I do believe that random scarring on my face is related to my immune system, and the only way to boost my immune system, in my opinion, would be juicing. If you watch the movie, you will understand what I am talking about. I started exercising last week and cut out sugar completely out of my diet. Only time will tell whether this would make any difference or not, but I feel happy and hopeful believing that I can actually do something about this condition. Even if it didn't fix my problems, I would be healthier at the end of this journey. I wish you a wonderful Christmas and a happy new year.
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Sorry, I meant boafriend. Damn auto correction!! : (
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Wow my diet throughout the years has been exactly like yours. I chugged coffee throughout college and I love sweets. And I too have never had to worry about weight as I've always been skinny. Wow this is crazy how alike we are. But thing is, I'm sure there are other people like this as well, yet we do not hear about them scarring away. I'm seriously so depressed. I don't even remember how I lived my life previously like it was for granted. I just want to go back to when I had no scarring and no twitching/Benign fasciculation syndrome. Thanks and happy holidays to you.
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Oh, and also...I mean, like the typical college student, my sleep schedule was all out of wack during my 4 years and I've never been very physically active. However, starting February 2013 I made running a daily thing and kept at it until this September after I got a more demanding job. The diet has always been more or less the same - since I was a kid, I didn't eat very healthy though - tons of spicy and salty foods. I've cut down on that a LOT since my spontaneous scarring and BFS in March of this year though. I don't know...I doubt excessive caffeine over the years could cause such extreme reactions in the body like I am experiencing. I originally thought my twitching was from my sudden bout of exercise (which my body isn't used to), but neurologists have ruled that out saying that even if I did have twitching as a result of sudden stress, the twitching would not continue for as long as it is right now (it's been 9 months now). Would I have to see an internal doctor for deeper testing? Because my stomach did take a huge blow summer 2012 when I was overseas - I had some very weird food poisoning that made me have diarrhea for 3 straight weeks. The doctors gave me various medications that didn't work - I eventually got to one medicine that stopped the diarrhea, but I was never given a diagnosis as to what happened (it was assumed to be food poisoning or traveler's diarrhea, since I was from overseas). My stomach was okay afterwards, but I worry because when I eat certain foods now, such as oatmeal, I will have an upset stomach shortly after. And also, sometimes my stool (sorry, I know this is way TMI) has a metal smell to it. My mom told me there's a very extensive test that internal doctors can do but it involves sticking a tube up the anus to actually scan the intestines, not to mention you have to go on a water diet for days, and you will have to poo nonstop. It just won't work for my current work schedule. I don't know what to do.
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Boafriend, have you ever seen a naturopathic doctor? Naturopathic doctors do extensive testing to check thyroid, hormonal imbalance, food allergies, etc. It sounds like you might have a lot of toxins built up in your body. Naturopath is not covered by medical insurance (in Canada) and therefore a visit to a naturopath clinic can be very expensive. If I were you, I would go on a green juice fast for 15-30 days first to boost your gut flora and immune system. If you watch Fat, Sick, and Nearly Dead, you will see how one's poor immune system can cause rare skin problems. About caffeine.... While you are detoxing, you are not allowed to drink coffee or anything with caffeine as a matter of fact. My psoriasis is caused by overly active immune system, so any type of stimulant, theoretically, would make my symptoms worse. Quitting coffee would be the hardest thing for me, but after all my research and a long period of denial, I have finally realized that I have no choice but to eliminate coffee out of my diet. It just needs to be done. I am planning on buying an Omega VRT 400 HDS juicer this week. It is pretty pricy, but I think it is worth the money. I will let you know how my juicing experiment goes. In the mean time, please watch the documentary that I have mentioned earlier to learn more about autoimmune diseases and juicing. The documentary gave me hope and inspired me. I hope it does the same for you. Wish me luck with my juicing experiment! I will keep you posted. : )
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I actually have seen a naturopath, but I felt it was a huge waste of money. All he suggested was I buy some metal detox products, and he kept putting focus on my home environment and relationship with my mom as the source of my twitching and scarring. Didn't make ANY sense to me. I brought in my previous bloodwork to show him the findings (and I wanted to probe for further testing), but I just don't think the guy cared as much. I'll try watching the documentary when I can, but honestly it's going to be IMPOSSIBLE for me to eliminate coffee. I mean, can I have at least one cup a day? It doesn't make sense how the whole world is able to enjoy coffee (with millions of people enjoying many cups a day for years), yet everyone is fine - yet with me, I have some freak autoimmune reaction that isn't detected via blood tests, but is destroying my face. Sorry I know I sound super stubborn right now, but it's just ridiculous to me. I feel so cheated of everything. And for the scarring, I had read on Acne.org that some people believe it's caused by an imbalance of Omega 3 and Omega 6 fatty acids, namely an excess of Omega 3. Funny because in the 5 months or so before my random scarring started, I had consumed fish on the daily. I don't know why, but it was just the only thing I would eat. But the naturopath I went to said this wasn't possible. .So..-_- And I definitely wish you luck. Keep me posted
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Hi, boafriend, Some people have negative reaction to omega 3 from fish oil, and my random scarring also started after taking salmon oil pills daily for a few months. So I stopped taking them about six week ago but am still taking flax seeds daily. The reason why you should not drink coffee is not only because it is a stimulant, but is because it is acidic. People like you and me should eat alkaline forming foods to rebalance our PH balance. Years of drinking coffee and eating junk food has damaged our body and we now need to repair it. You keep on saying how unfair it is that we have to stop drinking coffee, but I do not look at it that way. If I could get my health back by quitting coffee and only drinking green juice for 60 days, I would actually feel blessed rather than angry. We have had good years of eating whatever we wanted to eat without having to worry about gaining weight. Some people spend their every waking moment wondering how they are going to lose their excess weight. I know for sure there are millions of people out there who are desperate for some kind of answers to their health problems. I feel hopeful right now thinking that maybe I have found a solution to my health problem. Wouldn't it be amazing if we could get our health back just by changing our eating habits and lifestyle? That would make me feel like the luckiest person in the world and I will always choose a scar-free face over a daily cup of Joe. I'm afraid you might have a very high level of mercury in your body. Eating fish every day is not recommended these days; in fact, eating fish even twice a week is too much these days. Have you done metal detox yet? If you haven't, you should start right away. Get the toxins out of your body first, and once you see what kind of difference it makes, you will be more motivated to change your diet. Oatmeal is acidic, and maybe that's why it's giving you stomach pain. Check out the list of alkaline and acidic foods and see if you can make some changes to your diet. Stop putting more mercury in your body by eating fish. If you want to make a difference, you have to be strong. Completely get rid of coffee out of your diet while you are detoxing at least. After metal detox, try complete body detox (liver, colon,...) and parasite detox (especially if you've been eating raw fish). Be happy knowing that YOU might be the answer to your own problem. I really hope that we are on to something here. If I find something that works for me, I will share it with you, but you have to be strong and determined if you want to heal your body. Don't get hung up on little things like coffee! I don't know a single person who likes coffee more than I do, but it's time for me to let go of that habit and I will gladly do so. And it is possible that coffee might not even be related to our problems, but quitting coffee is something that I CAN do. I am not convinced that there is any doctor out there who knows what's happening to our faces, so we have to do our own due diligence and find a way to heal our body. If you are skeptical about my theory, that's okay too. After all, I am not a doctor. I am only trying to put different pieces together to save my health. I am hopeful at this moment. : ) Good luck to you, my friend, and I wish you a happy new year!
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Alright, thanks. I appreciate your kindness. What about tea and hot chocolate? And do you suggest I still see an internal doctor? Just for the hell of it?
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Hot chocolate is nothing but refined sugat, so you should not drink that stuff. If you really want caffeinated tea, drink green tea, but I would stick to herbal tea during detox. Seeing a doctor for any test would be good, don't you think? Ruling out anything that's not related your problem would be a good step to take. Get a second or third opinion if you are not convinced by what the doctor says. Keep on trying. Good luck to you and remember to eat healthy. : )
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