My silicone gel implants are 35 years old. MRI shows intracapsular rupture but doesn't rule out extracapsular. ANYONE?

  • MistyLady
  • 11 months ago

My implants are beneath the pectoral muscle. My wonderful surgeon who did the surgery died prematurely so I have no access to my medical records.  However, the name Dow Corning rings a bell--I had had saline implants previously and I hated them.  I remember my doctor showing me these gel forms that resembled Steuben glass---and he demonstrated how naturally they moved.  And I remember thinking that it was ironic that a company like that could produce something so beautiful. Does anyone know how to find out if this silicone has leaked out to my lymph nodes?   Was the silicone gel implant of choice 35 years ago made by Dow Corning? thank you for any info you can share.

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check out the dow corning settlement web site, there is a deadline for filing for possible explant money. If done at a hospital try for the medical records. also they have a list of physicians that they will accept documentation from regarding their (dow) implants.
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Quick question- I have tubular type breasts and I'm thinking of getting implants in the next few months. Why does everyone in this thread seem to want them out? Please tell me why I should or shouldn't get inplants? Any info would be greatly appreciated. I'm 34 and have 2 children and very healthy and a active person. Thank you.
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Mine are 37-38 yrs Inplanted. Latest MRI has indicated both intra and extra capsular ruptures. When the Dow-Corning controversy came to the forefront in the 90's, I was most alarmed. Did check and was told that the surgeon had not used D-C. Hard pressed to say that at that time they did not use them, but hopefully then weren't for you. Iam seeing PS on Friday and will have more info then. Now that I know there is a problem, I am very anxious to have them removed. No replacement as who needs further problems at 80ty!! Now 69 and I have had virtually no concerns till now.
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Dear Elephantlady, Hope your consultation goes well today. Thinking of you. I agree with the "now knowing", and that we must remove them. I'm 2 wks out from the surgery, will have a lift & certainly no implants! A little nervous, but looking forward to some relief, as well. My MRI confirmed the mammo of rupture and showed intra/extra capsular leakage in the L implant. Ugh... I look at her and say "Girl, You will be coming out soon" then there'll be no more gunk in my body. I am glad to have found a woman close to my age & with implants near the age of mine. Take care, Sister.
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thanks for the thought yesterday!! You will do okay---seeing the PS really helped as he said even slicone from ruptures should stay within the capsule that has formed. Plus removal of capsule and silicone surgery is relatively simple and straigtforward. I will not be having a lift though---so can only speak to what he said about a removal. As most surgeons have never seen implants as old as mine, most will be very curious to be there!! :) I have no problem with the spectators as their expertise in PS could be a benefit. Scheduled for 10/1--so right behind you. I will have drains for a few days. So we will cheer each other on :) Take care--
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I had Dow Corning implants put in 1981 in Lima, Peru. Unfortunately I think my PS has since died and the clinic was a private one and doesn't exist anymore. Anyway the NHS in the UK has taken them out free of charge because one had bled and the other ruptured intracapsular which is good because the PS said it didn't leak out, he washed the cavity very well after removing them. I am 6 weeks post-op and haven't had IBS or GERD since.
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If I can help here, I just had Dow Corning implants removed. Misty if your implants were put in at a hospital go there for records. My original PS is also deceased but the hospital had everything from 32 years ago. I also had an MRI to check for rupture - no injection - MRI did state rupture and my explanting surgeon looked at the MRI but I will say I don't think he would have cared if I didn't have it. I only had one side done in the MRI because I had fallen on the ice and hurt myself - Medicare paid for it. Actually when the PS got in there, the other side had a MUCH worse rupture. I have submitted what I could to Medicare (and I have BCBS supplemental), For some reason I don't hold out a lot of hope that they will cover anything - just a feeling I get. I also did not feel that my doctor wanted to be very involved in me trying to get reimbursed. I put it on my Discover and will pay it a little at a time. I'm just glad they're gone. I'm feeling very well, healing fine and have to assume he did the very best he could getting that silicone out of my body. He showed me photos and my right side was a mess. It came out in pieces - not all intact as I would have liked but what can you do?!
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Thanks for the info. Mine come out on the 17th, and I did print out the Medicare form 1490S to try to get reimbursement (AARP supplemental). Since both of mine are ruptured, they are supposed to reimburse us, but let's hope, BTJM! The office said they'd give me whatever they could to help me get paid back - I'll try to get pictures, too - but, as you say, if they don't reimburse, I'll just pay back my Visa card a little at a time. Totally worth it anyway, and I can't wait until they are gone & out of my body. I'm sure mine will be in pieces, as yours were. They didn't ask for MRI's from me, just a chest x-ray, bloodwork and ekg & doc clearance.
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I'm not positive but I believe I read that Dow Corning will pay 5000.00 towards the cost of removing their implants. It would be worth it to spend a little time researching online.
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Dear BTJM, I, too submitted everything to Medicare, on the right form, with pics, doc notes, etc, but they wrote back & want more code numbers, etc...I'll get what I can from the PS, but he isn't a Medicare doctor, being a plastic surgeon & not dealing with insurance, as a lot of them don't....I'm also paying mine off on my Visa, but as you, I don't think he'll get very involved in getting reimbursement for me. I feel fine, mine were also a mess after 35 years, but at least I'm all ME now. I'm 2 1/2 mos post, the sports bras serve me well (I'm flat but ok!!), one nipple still in hiding, and the other boob not pretty on the bottom, but he did the best he could with my mess, as yours did. Glad you're feeling well! Will post if I ever get any money from Medicare!!
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I received a denial from Medicare but I did get reimbursed from Dow Corning, so I have no complaints. My surgeon was great but I did not feel as though he wanted any involvement in my reimbursement either from Medicare or Dow - I was really on my own. Your doctor sounds more helpful.
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Fingers crossed for you on getting some reimbursement; I think it's hopeful for you, in that they asked for more information. They did not ask me for anything, just flat out denied. Guess I could have fought the denial, but at that point I had found out that Dow Corning was going to definitely reimburse, and I had no interest in "double dipping", along with the fact that I'm not real good at having to fight for something. Think I would have tried though if I did not have the manufacturer to help me - you really do deserve it.
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Mine were McGhan's, great ones at the time. Not sure who owns them....maybe I can check into Dow - I know they were purchased by some other company. At any rate, after all these years I'm just happy to have them out....wish I were a little bigger than flat, but it's ok....:)
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When I saw PS, he said if Medicare accepted my claim that his office AND anesthiologist etc would Be required to refund my payment and take the Medicare/AARP settlement and that their payment could be considerably less. Was concerned about repercussions that this could unleash. Said he would give me a better price but asked me to reconsider application to M. I thought the two payments would be independent of one another and that Medicare would be reimbursing me for what it considered, if approved, the amount they would pay. Any insights???
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I checked Dow, but they only reimburse for McGhans implanted after '84, so that's not me. Also, you have to have the original Mfg. tags - well, I never had them in the first place, so guess I'm not getting reimbursed, as Medicare wants, as you mentioned, the anesthiologist details, etc....a lot of PS's just work on 'cash/credit', they don't deal with insurance, so it looks as if I'll just be paying off my Visa for a year or so!!! Still worth it....glad the old bags are gone...the only bags I have left are all me :)
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I thought the same as you. That sure explains why they are not very helpful when they hear we want to submit to Medicare.
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what did you have to provide to dow to get the reimbursement? My PS says there would be no way to identify when removed.
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I was able to get my records from my hospital even though It was in 1981 - I actually registered with Dow back when the problems started to surface. I still think you can do it however if you can find any info. I do believe it's true that the implants have no tags on them unfortunately. I have a pic of mine in my review. They are pretty much a pile of mush!
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I am 7 weeks post op from al,ost 30 year old silicone implants. I had a breat MRI in January that showed implants in tact. I have suffered with many health issues including seve Fibromyalgia so I decided to have them removed after research showing a possible connection. I went to Cleveland to have Dr. Feng, one of the few who also believes this, remove them en bloc. She insists on an ultrasound and lo and behold....I had a huge intracapsular rupture as well as silicone in my lymph nodes on both sides, breast bone, collar bone and axillary...10-12 on both sides. She told me that ultrasounds are much more sensitive to these findings. I was shocked since my understanding is the breast MRI is the "gold standard". Read my entire profile for all the details. Good luck to you.
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Mine are also 35 years old, and coming out on the 17th. I'm 66. Mine were made by McGhan, the best at the time, in '78. No problems most of my life, but now both are ruptured & one has a leak....hopefully he'll get all the crud out on the 17th so I can finally be myself again! You're right, they were beautiful to look at, OUTSIDE our bodies...but inside it's still a foreign substance. I only wish I'd had more brain cells at 31!!!
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WOW---Verana, I'll be praying for you---I'm meeting with a surgeon tomorrow----what local symptoms alerted you? did you have any other health issues like raynaud's disease, fibromyalgia or connective tissue disease of any kind? is the silicone in your lymphs? i used to be very active physically, but my health has gone downhill the last 10 years.......& like you, I want to feel like my old self again ----tell me how you figured it out---i'm almost 60 but i know there's a part of me that it totally freaked out!
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Nope, no other health issues, I just noticed a year or so ago that my left one was more squared looking on the bottom, whereas the right one is the rounded edge. Then the left one developed a 'pull-in' spot, which apparently is a leak, he said. In fact, he said he was surprised the silicone wasn't leaking out of my body in that spot!! Ick. He said he'd 'just clip it out' & that I'll look fine....now I'm so anxious I just want HIM to stay safe & healthy until he operates on me in two weeks! I don't want anything to delay it....:)
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I didn't post anything for 2 weeks because once I sit down at the computer, I could stay all day! Anyway, I'm 2 weeks out today of explant with lift, and have been following dr's orders. The breasts don't look happy, but it might take some 'down time' for them to recover. :-) My left, in particular has a dent at the bottom and is bruised on the side, it drained twice as much as the other breast. It was also the one with contraction. I walked 3 days last week (nice to get out). I'm still careful since I can feel stitches pull with arm extension. My ''heart bandaid" still surround the areolar, and I have a post-op visit with ps on Friday. Time marches on with!
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OMG---this does not sound pretty--my heart goes out to you.....are you having much pain ? (not "discomfort"!!) bruising will dissipate but whythe dent? may i ask if you are considering implanting another pair? after breastfeeding 3 kids, i don't think there's much of me left....
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I've had no pain that I didn't have before the surgery. :-) My neck and shouders are achy, I think from sleeping on my back all the time. I checked some other post comments, and dents are common (I didn't know that when I made my post). They are probably small empty pockets where the breast tissue hasn't filled in yet. The compression bra, post-op, helps remove the pockets and fill in the space. After surgery (when I saw my breast) I thought about implanting another pair. My ps forewarned me that I didn't have much breast tissue, had breast fed 1 child, and would be small after surgery, so I was kind of prepared. Going from a C to an A/AA is still depressing me, but my health will be better, and if I can accept my appearance, others will look past my appearance and more at my character. :-) I don't regret that I got them out. I'll 'decorate' the ones I do have and move on to better health!
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