Dysport: Forum
Post to Forum

Anyone had serious Dysport or Botox side effects?

By 2509anon on 18 Mar 2010

Has any one had a serious side effect such as diaphragm paralysis with Botox or Dysport?

View 9 doctor answers to Dysport Side Effects - What Are Common Complications?

Comments (201)

Sort by
Kobu 4 May 2013
-:- Message from RealSelf staff -:-

This comment does not follow our Community Guidelines and/or Terms of Service. We reserve the right to remove any post for any reason.
Tlhtpa 28 Mar 2013

I have had dysport injections 2 times the last time was 10/11 prior to yesterday. During the injections I started to feel nauseated and broke out into a sweat. The dr stopped and told me I was getting ready to faint. He reclined the chair and waved ammonia in front of my nose. It took me quite a while (45 mins) to feel steady. He took my vitals and my bp and pulse were very high. I had a friend drive me home and I have checked my bp and pulse several times and I'm within normal range. It was very scary and I will not be getting anymore dysport!!!

Hmanchester 17 Apr 2013
This is the exact same thing that happened to me except obviously my nurse couldn't care less as after my first injection all she did was get me to hold ice on my chest for 5 mins and then carried in doing all of my forehead. Happy that you had a lucky escape!
Ronita 10 Feb 2013
What can be doneif anything about the crushing fatigue? I am so exhausted all of the time!
Sandy Calif 10 Feb 2013
That's a good question. Research fatigue on line. One thing I use that has given me about 25 percent more energy is chia seeds! They are awesome!!
Ronita 10 Feb 2013
Thanks, Sandy. I've been juicing and experimenting with Chia seed recipes! I also just discovered dry skin brushing as a way to get rid of toxins through the skin.
Huddie 11 Feb 2013
Ronita, When was your injection? I am the same. In the beginning I couldn't even move. I had chronic fatigue in my 20s so I know what it's like. This was 100 times worse. I was tested for Cfs and epstein barr, thinking they were activated by the injection but tests came out negative. I was injected in June. I am a super healthy person who exercised every day. I have barely exercised since June (maybe 10x total) and I need 9 hours of sleep to even feel normal. Lots of supplements, sleep, no alcohol, and green juices help. I'm telling you this has taken away most of our lives, I should say, any quality of life.
Ronita 11 Feb 2013
Juicing seems to give me an energy boost, and avoiding any sweets. By 8pm I feel like it's midnight. It's been like this since October 2012 when I was injected.
Klohr21 19 Feb 2013
I read the same thing. Had botox 2 yrs ago, then vertigo. Nobody could tell me what was wrong- and the Dr said not from that. Now I got Dysport 3 days ago and im laid up in bed fighting this off. Was at the emergency room Sunday night after I felt like I was dying. I also read flushing your system, high fiber vegetables, tons of water, massage therapy, and possibly sauna can accelerate the body ridding of the toxin. Personally, Im calling a lawyer b/c i spent time out of work, Dr's bills, and pain and suffering bc lack of responsibility of the FDA and drug companies. If it can affect you neurologically, thats a problem. And vertigo is just that.
Klohr21 19 Feb 2013
I had this happen 2 years ago and didnt know why- it gets better. Just keep plugging away. Try also massage therapy and exercising for fat metabolizing. Saunas. It will end i promise.
Depressed NEVER USE DYSPORT 20 Feb 2013
Unfortunately Dysport lays these symptoms out clearly. The injectors are the real problem in these situations. They are making hand over fist. Here is the link to DysportUSA. It will give you all the symptoms, etc. I don't recommend calling a lawyer. http://www.dysportusa.com/#isi
Huddie 21 Feb 2013
I totally agree. My doc suggested it and I said I've never heard of it "is it safe, I am very sensitive" and he said "yes it's been used in Europe for 20 years and extremely safe". Never gave me anything to read. These crushing symptoms have compromised almost a year of my quality of life. Injected June 2012.
Huddie 8 Feb 2013
Has anyone who has gone through this with Dysport had botox afterwards without any side effects? Curious as to whether we are now more susceptible of this is something rare that only happens with Dysport. I only want the two lines between my brows done and will obviously never have dysport again.
Depressed NEVER USE DYSPORT 8 Feb 2013
I would like to know to....I have some deformity in between my eyes now and I can't get the muscle to stop contracting and it is sore all the time. It would be nice to get some relief if botox could help that.
Kobu 10 Feb 2013
These side effects happen with both Dysport and Botox. In fact, there are over 30,000 reports of adverse side effects reported to the FDA resulting from Botox injections. There have been several lawsuits filed against the manufacturer of Botox from individuals who have suffered severely...many of which are settling out of court. While there are slight variations in the formulation between the two products....the toxin that causes the damage (and yes, the way that the products work in causing the muscles to relax does DAMAGE the nerve endings) is the same. Anyone is susceptible to the spread of the toxin...whether you have had either Botox or Dysport for the first time...or whether you have had it for 10 years without problems. It can happen to anyone at anytime.
Kobu 10 Feb 2013
I am confused....are you asking if Botox could help the muscles that are now contracting as a result of your Dysport injections? I am not sure why you would want to inject more toxin into your muscles after having such a bad experience already. But...to answer your question....obviusly botulinum toxin does cause muscles to relax by damaging the nerve endings. The muscles start to work again when new nerve endings sprout outside of the original nerve cell. HOWEVER.....I would never, ever inject more toxin into my body. I have not read your story....but I will tell you from my experience and knowing the experience of DOZENS of other people....that muscle stiffness, contractions, pain, weakness, spasms....are all the result of the damage that the toxin has done. And...this damage can travel beyond the injection site. For me.....I had injections in my glabellar lines, forehead and crows feet area. I have horrible contractions in my forehead muscles....sometimes so badly that I can't open my eyes. Due to the spread of the toxin throughout my system....I also have muscle cramping in my traps, legs, feet, arms....at times so severe that I am awoken from sleep and it takes hours before they relax. I know someone whose muscles cramp so severely that she has dislocated ribs as a result. My advice is to allow your nerves to heal as opposed to damaging them even more.
Huddie 10 Feb 2013
Kobu, Wow I am very sorry for all that you've gone though, and grateful for your sharing of your knowledge. I really wansn't sure if dysport is completely different from botox. I've heard dysport is much stronger and much more likely to spread. I had had botox about 10 times in my life before having dysport once! The day after the dysport all this happened. I have those two lines you speak about and I was wondering if having botox in them would be safe but now I see now, definitely not. Were your very bad cramping/spasms after dysport? Hope you feel better soon.
Kobu 10 Feb 2013
Huddle....I didn't have any of things problems before the ill fated last injection almost 3 years before. I had had Disport once before without problems....and I know several women who had Botox several times before all o a sudden the spread/side effects happened with them.....so there is no predicting when this can occur. I have the full list (and then some) of systemic illness....ringing in the ears, noise/light sensitivities, concentration issues, vision issues, dizziness/vertigo, etc...in addition to the muscle issues. I was a healthy, physically active (runner and biker) prior to the last injection over 2 years ago and have been sick ever sick. Te symptoms tend to wax/wane and I have times of recovery and relapse....which seems to be the course of this illness for most people. As stayed....the toxin when activated in Dysport and Botox is essentially the same. The only difference is the dilution factor, the carrier method and the formulation of the surroundinng proteins. Comparing the two on a unit to knit basis... One unit of Botox is actually equal to 3 units of Dysport. The scientific data regarding the likelihood of adverse events between Botox and Dysport is confusing. Some controlled studies have shown that there is a higher incidence of occurances of adverse events with Dysport...but that doesn't mean that it doesn't happen with Botox. There are even longer discussion threads on this site regarding health problems as a result of Botox. Hopefully in time your spasms will lessen. No one really knows why these issues occur....one neurologist has told me (and I have read ) that the "repaired" nerve endings aren't as efficient as the original ones...and an "overload" of signals can cause the resulting issues...which can manifest itself in several ways...muscle spasms being one of them. So...do things to help yourself heal.
Sandy Calif 10 Feb 2013
Prior to dysport I had had Botox several times. Then, suddenly it stopped working. I then heard if Dysport, gave it a try and it worked without issue. 6 months later I went in for Dysport again and that's when it happened...
Klohr21 19 Feb 2013
I used both, happened both times. Its the toxin. Stay away or you'll go for round 2
Klohr21 19 Feb 2013
The pain (emergency room tells me) is from the body trying to keep the toxin away from your heart. So usually lands below the belt, but sometimes flushes up. Dont forget , blood circulates to regenerate so your body needs as much immune support as possible. And any help circulating and metabolizing this horrible toxin. Im lawyering up, thats for sure
Depressed NEVER USE DYSPORT 20 Feb 2013
Here is DysportUSA link. They are very open and clear about the side effects. The injectors are the problem. And when you sign the paper at the injectors office that clears them. I don't recommend wasting time and energy on a lawyer. Trust me i know this sucks. I wish I could fix my deformed forehead. It has been 18 months of waiting for my face to "go back to normal"
anonymous104 21 Feb 2013
DON'T GIVE UP HOPE ON SUING!! It took effort on my part, but I am currently suing the place that injected me/ruined my life. I also have the name of a lawyer representing a group of women going after a class action suit. I would be delighted to assist anyone with information that can help! Private message me :).
jeannis 17 Apr 2013
How did it ruin your life? i feel bad for you I had injected October 2012 and have not felt right since. Recently I had thrush, and VERY hard to get rid of, and sometimes vicious headaches, very weak and NO energy at all, but I am not SURE it is related to the Dysport???
Huddie 8 Feb 2013
I am 9 months out and still have terrible neck and back of head pain and the ear pressure is terrible. Every day feels like a long airplane flight or scuba diving. My eyes are still puffy and tearing and I continue to need 9-10 hours of sleep a night to feel normal. I love that the derms say it has nothing to do with the Dysport yet we all have the exact same symptoms and they coincidentally began the day after Dysport. I have not felt normal since June. I've also had numerous, expensive testing, and two 3-4 week illnesses that are related because of my immune system and what this has done to it.

Welcome Back

Sign in with Facebook

Your information remains private and will not be posted without your permission.

Forgot your password?

Don't have an account? Create one now.

Join RealSelf

Join with Facebook

Your information remains private and will not be posted without your permission.

Please enter a valid email address
 Did you mean ?

By creating an account, you are indicating that you have read and accept the RealSelf Terms of Use.

Already a member? Sign In.

Retrieve your password

Enter your username or email address and we will send you a link to login.

Check your email

Check your email. We've sent you a link to reset your password.

Ok