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Anyone with autoimmune disease should avoid collagen fillers

  • TxOrchid
  • South TX
  • 2 years ago

Do some research for yourself.  But know there are" no studies showing those with autoimmune disease can safely have injectable collagen fillers."   In fact, at least one collagen filler says in the package insert, that the filler is "contraindicated for those with autoimmune diseases."  Another insert said collagen filler "could trigger autoimmune disease."  I forget which ones but I was researching Radiesse and Scupltra and similar fillers. I have had a medium high ANA, Hashimoto's thyroiditis, fibromyalgia and "unclassified connective tissue disease" (I call it Lupus lite) fairly stable for 30 yrs.  Afyter having Radiesse injected in cheeks, within a year my blood tests by my Rheaumatologist show new SLE-Lupus anti-bodies.  We're following my labs now as I appear to be going into full blown Lupus.  Bummer. So I would say avoid collagen fillers and stick with hylauronic acid only until studies show it's safe.  I'm avoiding Sculptra for this reason also.  Connective disease  does seem to age your skin,, at least in my case.  I may also have undiagnosed Sjogren's Syndrome but many of us have super-dry skin and mucous membranes.

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Also do not do botox. I also have an undiagnosed autoimmune connective tissue disease that has been pretty mild for the last 8 years. My DR think possibly pre-lupus, and after I did botox, I had a full blown episode... shortness of breath, muscle contraction/spasms, digestive up-set, heart palpitations, sore joints and my ANA was positive and C3 low.. I didn't relate the two until the botox started to ware off and I started to feel better. I have been fine with HA filler and will only use this filler on occasion and sometimes its best to use a little at a time, 1 syringe, and go back for more a week later. Too much, too quick can also stimulate an immune system attack.. I also try and avoid any Lidocaine if I can handle it. For me it is frownies, micro current and good organic skin products. Careful of anything can can stimulate the immune system.. I also watch which supplements I take.. no immune stimulating vitamins..
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Wow , thank you so much for this information . I have RA and have had many fillers , the filler always ends up going hard and is visible under the skin . It also often gets very sore and feels like an infection brewing underneath . I thought i was the only one with this sort of problem . I really like the way that fillers plump up the skin but i cant use them because of the awful lumps i get . I was told to try Sculptra but i think this will be worse for me . Is the hyalaronic acid a better way to go ??
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Thank you so much for sharing this important information. There need to be more sites documenting real life information like this, information that those in a financial situation to gain from the widespread use of fillers would not have an incentive to report or write about. I appreciate your sharing. I developed some kind of unspecified inflammatory/autoimmune illness with symptoms similar to RA within weeks after using Juvederm and Restylane for the first time. More than a year later my symptoms remain and I have not only pain and swelling in all my joints but some joint damage showing up on xrays. No one in my family has any symptoms like this and I was not sick before getting the injections. I also got a carcinoma on the exact injection site of the Restylane where the skin was clear before.
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I too suffer with an autoimmune disease since 2003 and post restylane. My started approx. 4 months later and I have Palindromic Rheumatism since then. It is hard to diagnose and took doctors a few years to conclude. Symptoms similar to you but with no joint damage.
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Oh wow this is very enlightening. I just had injection s a week or so ago n my joints are hurting me alot. I'm so vein I'm planning on doing more I hurt all the time anyway n didn't really make connection. I have an autoimmune disease n servere FM. I had botox done 8 years ago n dysport bout 5 years ago n both drs ended up doing it twice cause they couldn't believe it didn't work! Nothing! I'm one of the 2% botox doesn't work for...
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Wow Hils69 , i too have Palindromic Rheumatoid and it took years for it to be diagnosed . I have stopped using fillers altogether now and just have to put up with the ageing process . It really isnt worth it for me to have lumps on my face and then go have them all dissolved .
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People with autoimmune disease should look into using laViv (mylaviv.com), a new treatment recently approved by the FDA.

laViv is made up of your own fibroblasts, cells that produce collagen, hyaluronic acid and other structure proteins that made up the skin. This treatment does not produce an instant results as the dermal fillers (Juvederm, Restylane, etc.) because the cells take time to integrate into the skin structure. But once the integration is done, the cells will multiply and live for years. Most patients treated with laViv did not need any repeat treatment for years afterward.

Do a google for "janet david and laviv" for a testimony from a patient treated 7 years ago in a clinical trial.
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:)) Good luck.
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Hi Tx, 

This is really important information for the community. Thank you for passing this along and I will for sure send people looking for information about Autoimmune disorders who are considering getting fillers. 

Thank you,

-Britt

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I agree! Thank you
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