Can anyone advise me about what to look for and what to expect after I return home form my DIEP flap reconstruction?

  • Houston4263
  • 3 years ago

My doctor is five hours away.  Perhaps you ladies could give me some tips as to what to expect.

Comments (108)

Sort by

Hi. Having a double mastectomy with diep tram reconstruction on 09/29. Was wondering if anyone had the pain med bulb after their surgery.
  • Reply
Wow never heard of it.. Sounds like something I would want I guess. I had a double mastectomy with a delayed diep flap..hang in there Beth but will keep you in prayer.
  • Reply
Hi Beth. I had the med blub and it work out well. Wishing you all the best
  • Reply
Hi for me it was and still is a slow rcovery 8'weeks out, the first 2 weeks I was not allowed to use the right side from the diep flap, side that had reconstruction. Your going to go home with at least 3 drains . Two were taken out after a week and the last one the following week. I was very tired and more sore then in pain, 3 weeks after surgery I started PT. I honestly can say it was harder then my double mastectomy. I had Ilya to and the side with the radiation had 3 surgeries from infections. The reason I had the diep flp,was I had no vessels that worked so we used my stomach. Unfortunately I had muscle,taken out so that contributes to a longer recovery, had mesh put I to my stomach. BUT you can get thru it...let me know if you want to call me would be happy to talk. Hugs
  • Reply
Hi juts wondering how you are doing from your surgery on August 4th..
  • Reply
Hello just a little note to let you all know the surgery was a success I am 6 days post op and feeling better. I have 6'drains and hopefully some will be taken off on Tuesday. I had a great team of doctors and staff to help assist me.
  • Reply
so happy for you, diep flap is less recovery then tram flap unfortunately I had to get muscle taken out so I will be 7 weeks tomorrow, still swollen but it can taken up to 6 months for swelling to come down, now you can use your arms? I was told not to use any pressure on my arms so that was the challenge, you probably will have one removed from stomach and the other left, I used a Dr. Dayan who is in NYC at Beth Israel, and h is wonderful, is really slow going but I would strongly suggest if its okay with your doctor to start PT after three weeks. Hang in itdoes get better. hugs joyce
  • Reply
Hello Ladies hope everyone is doing well. FINALLY having my surgery on Aug 4. the stories I am hearing is really helping me out. did anybody get a home health aid.
  • Reply
I am 46 had double mast and diep flap done by probably the best PS for this procedure in country. Dr. Serletti chief of PS AT UNIV of PA. No complications beautiful job but I will not kid any of you that it has not been a picnic. 4/22/14 date 10 hour surgery. I am still in some pain and my belly is swollen. He told me 6 to 8 months before complete healing. Just wanted to say this is tough. Then throw tamoxifen into the mix. I know I will be fine but don't want anyone to think this is over quick. Bless you all!
  • Reply
Lorraine thanks for you reply. I was due to have surgery on July 7th but my doc cancel it due to them finding something on my adneral gland so now I have to take some more test to make sure everything is clear. Wishing you a speedy recover
  • Reply
Had mine on the June 23 . Very hard sore, pain swollen, but we can do,this,
  • Reply
I did my July 23, not a quick healing and the challenge is wearing pants,unfortunately I had muscle that needed to be used so it's an even slower healing, any suggestions on what to wear. Doctor says nothing tight
  • Reply
I can tell you I anticipated more pain it was more of discomfort. I came home with 4 JP drains. Two drains were for left and right breast, the other two were, for each side of abdomen. A visting nurse came twice to check the drains. You will be instructed in the hospital how to empty your drains. Its very simple. I found safety pinning the drains to the stomach binder less uncomfortable. 3 drains were removed 10 days later one abdomen drain remained for another 7 days. Everyone is different, but hopefully, my experience can give you an idea on what to anticipate and how to prepare. Your breast will be swollen, so make sure you bet really good sports bra, once you figure out what size you are. It took several trips and returns (my poor daughter and husband endured the pain). The first week was the hardest, being totally dependent, on simple things as bathing. As each day passes you will regain strength. It is important to rest when your body tells you, but try to move around through out the day, to avoid stiffness. You will also need alot of support and assistance for a few weeks. I am on day 19 of my recovery and I am able to do more with assistance. I still can't bend, stand straight, stand for long periods, or drive but I can sleep in my my bed (slept 11dys on couch post-op), I can also make quick trip to grocery store, I was able to attend church, was able to aaccompany my kids to a movie yesterday. There is still discomforts but not as intense. I hopd tbis helps and good luck. I had a double mastectomy with the DIEP flap reconstructive surgery on 06/03/14.
  • Reply
Thanks for this information. It has made me a little at ease I am just praying that all goes well. Hope you will continue to heal. Thanks
  • Reply
Your welcome. I was extremely nervous days leading to my surgery also. Everything will go just fine. A positive attitude is very important now. I wish you well.
  • Reply
having breast implant remove due to capsule contracture and doing DIEP Flap in July 2014. I am scare and confused. Any suggestions
  • Reply
I am at the end of week 2, from a double mastectomy, with skin & nipple sparing DIEP flap reconstructive surgery. I anticipated much more pain than I actually felt. There is alot of discomfort, but as each day passes it gets better. I am still unable to drive or bend so I require assistance. Also no complications and all is healing well. I think you should, consult with your team of surgeons, if you still have any doubts and concerns to be sure this is the right decision for you. If your fear is based on pain, it's not as bad as we imagine. i wish you the best of luck.
  • Reply
I had so far one in plant removed next year the other due to infections. You can do this, it's not easy at the beginning but I am 4 weeks out and starting to feel better, hang in ..
  • Reply
I am 34 years old and had a double mastectomy with immediate reconstruction using tram flap procedure. My surgery was aug 27, 2013 took 11 1/2 hours. I was in icu for 5 days, and 3 more days in reg room.blood count was very low , has to have 2 blood tranfusions, flap on rt breast didn't heal like left . Before i left we were using bacitracin on incisions bcuz my stomach one had blistered and left a gap. Since I've been home my stomach incision just right below belly button has opened up a lil a seems to be infected also belly button too. I calles ps n went back in she took out all drains but one and said tuea I will come back put me to sleep and cut open incision and stitch itback. But I am scared infection is too bad ive had 2 rounds of antiobiotics n still nothing. Can I ask to be admitted to have IV antibiotics ran ? Also my boobs are as hard as a rock is that normal does that go away? I will have nipple reconstruction in a few months at that time she will be making rt breast match left in size and hopefully lipo my dog ears on hip scars. Has anyone had this done. Sorry for all the questions. This has definitely been the hardest recovery ever .
  • Reply
Hi diepflapper This site doesn't seem to get much activity. If you are interested in talking to women going through the same thing as you come see us at Breast Cancer. Org and we are the thread DIEP 2013. Come take a look. You will be pleasantly surprised.
  • Reply
I am 5 weeks post surgery and the only pain I have is in my back on the same side as the new breast. I think I may have been doing too much too soon. I have an abdominal band the hospital gave me and that helps a little. I take Aleve and that helps also. Swelling in the new breast and abdominal areas are slowly going away and I feel very little pain there. The old (good) breast is saggier and hangs lower than the new one, so the surgeon said he can lift that breast to match the new one. I think I will wait on that procedure, just to see if the new breast will soften enough to hang/sag similar to the good breast. In the mean time I have to find something ( bra or other method) to keep the good breast a little higher so I don't look so lopsided. Any ideas out there? I am 60 years old.
  • Reply

I just finished 4 rounds of chemo and seeing a PC for a double mastectomy and DIEP flap reconstruction at the end of January. Can anyone tell me what recovery will be like? And what kind of shape I should be in 8 weeks after surgery. Wondering what questions I should have for my PC. I am 62 years Los and otherwise healthy. Thanks so much, Nbr

  • Reply
I am very swollen in reconstructed breast ani in abdominal area. My surgery was on Tuesday and I
Came out of the hospital today.
  • Reply
Sounds totally normal :) I was swollen for a long time after reconstruction but it goes down
  • Reply
did you only have the one breast reconstructed, and how was yr surgery, I wish you the best.
  • Reply